BAD News:Bob has hives from the drug and a rash,
my biopsy on my foot came back squamous carcinomas, appt on Nov 7 to discuss treatment. I am sure she will do chemo cream because it is on nothing but skin and bone and no room to cut anything out.
I continue to lose weight, which is a concern.
Good News: You may remember the chaos caused by 8 alarms set on the phone. 10 days are up, meds are gone, the 2nd photo is after I went on organizing mode, and below is NOW. All but 2 alarms are turned off, 5am 5 pm.
We are back to almost NORMAL for us.
I am slightly OCD, and I decided I had to make the house back as close as it was 7 months ago, 3 months since the hospital bed moved in the living room.
In a frenzy, I cleaned off shelves in to closets, tossed and tossed and set up a nurse station in the bedroom and living room, each with only what I use each day and night. Bob uses living room in day and bedroom at night. I duplicated each room with bedside commodes and all supplies are off the bed and out of sight in closets.
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| The spare bedroom bed was stacked high with all the boxes of supplies, the huge basket of STUFF that belonged to the infusion nurses is now gone. Jamie the RN went in the bedroom and went through the huge 4 infusion left overs and put only what they need in a small box and it fits in the closet. She took all the things to donate to the dog shelter surgical center.. and this time when the meds come, they will come Only RX no supplies needed. |
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| living room change nurse station |
the red lamp is for midnight runs, it doesn't blind or make me wide awake.Bedroom nurse station 
Beau is doing well and gives his 4 paws up for all the improvements of our environment.
Well hooray for being back to somewhat normal. It must have been nice to be able to eliminate some of those alarms and be done with some meds.
ReplyDeleteSo which drug is cause Bob's rash and hives? Will he have to stop taking it?
Sorry to hear about your biopsy. If I remember correctly you said that the chemo cream was an easy treatment though.
I'm sorry about the hives and the skin cancer. I hope you just get to use the cream again.
ReplyDeleteBut- you've done amazing in the house! Lots of work in your already busy days. I think it will help with a more peaceful day to day life.
Now to get a little weight on you!
Sorry about the bad news, I hope that will get better too... Well done on the organizing! I've been trying to organize/reorganize some things of my own according to my situation at present. Like my stock of various bandaging materials, and what to keep where, to have things "within reach" from favourite places. Scratching my head still about my bathroom, I have "sort of" solved some things but thinking I may also have to consult an occupational therapist about the possibility of getting help with a couple of more long-term changes. (I've had good help from primary care OTs in the past in connection with other problems.) Just feeling I need to think a bit on my own first, what might work vs if it might cause other problems instead...
ReplyDeleteHari OM
ReplyDeleteLike the weather, mixed... but on balance, more to the good, I feel. Trusting that the tx for yourself is as straightforward as a cream... POTP for you directly now! YAM xx
We vote NO on any future bad news, you've had enough already. Great big hugs from all of us dear friend.
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