Refresher of Bob's issue with treatment. Bob came home from hospital April 1st, he was told to contact the neurologist for eval and treatment, the first appt open was August 20. They put his name on standby for earlier appt if they had a cancelation. Even with home PT, he got worse each day.
June 11th, I contacted primary doctor for help and was told to print list of neurologists on health plan and call until I found an appt sooner, then call them with the name and they would send the referral.
There were 4 offices, all easy for me to reach.
I called Palmasola Neurology Assoc because it was the closest one and across the street from our dog park. 5 minute drive.
BINGO! First call and Appt person said, July 3rd, but we need referral before I can lock it in. My doctor sent the referral same day and we were so happy
June 16, I called to verify they had received the referral and to make sure the July 3 was locked in.
The nicest young man, verified and ask for info and filled out most on line, and he said
"we will see you on July, oh hold on a minute. We just got a cancelation for tomorrow, June 17th at 1 pm, would you like that time?
YES! Please.
fast forward to this morning, 9AM June 17th, Bob asked if he had time to get in the pool and I got him in the pool
and I sat down to watch him, the phone rings, the lady says, we just had a cancelation, can you get Robert here by 10 his morning?
We dragged him out of the pool, dried and dressed, I yanked off my gown and dabbed powder on the browns spots we were that at 5 minutes to10.
the office is runs like a Swiss watch! Wow, we done-and-gone in under and hour.
I rolled Bob to the door and we were stuck, the thingy on the door sill would not let me push over it.
3rd try and Ira, a perfect gentleman, said here hold this and handed me a bag and tried to dump bob out by manhandling the chair. I said turn it around and back him in.
He kept pushing, the front desk guy came and said, let me do this, ALWAYS back over anything that's in the way, and rolled Bob inside. Ira said, sorry she told me to try that. I said, Video on You tube said that.
much laughter.
We were in and out an on our way so quickly it was amazing~PLUS the same guy who rolled Bob in, Backed him out for me... YAY~
The doctor had Read the reports from the hospital site,
he examined and tested his legs and arms, and did dementia testing
AND ORDERED THE DRIP WE NEED TO TREAT CIDP (CHRONIC INFLAMMATORY DEMYELINATING POLYNEUROPATHY) diagnosed by hospital on APRIL 1st.
Bob will get 2 IV drips for one hour, 2 days the first week and 1 every 3 weeks for 3 months.
And he said you should see a difference after the first 2.
Beat the drum roll again. Are you ready?
The place we go for treatment is next door to this doctor, but the news gets better. Its a new office and they will
COME TO OUR HOUSE and do the drips until the new office is completed and inspected.
By the time we have to go to the office he might be able to walk in and not a chair.
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