UPDATE TWO

 

BOB fell, 911 call and EMT transported
 Bob to hospital, more later, prayers appreciated.

UPDATE Bob and now ME

 

ME first... Because I spend the majority of my time on my feet, taking care of the three of us, my veins have gotten much worse on my right foot and swells until I sit down and prop them up.  In the midst of the Infusion Chaos, which has shown no improvement yet, my Third Keratoacanthoma Skin Cancer (volcano cancer) in 14 months decided to erupt 3 hours before the doctors shut down for the 3 day week end of the 4th. The 2nd day of Bob's infusion, I went to my primary, because we need a referral this year and did not last year. The PA said it was infected sore, I said it is a carcinoma and I need a referral, she gave me antibiotics and salve, and said come back in a week. I WAS IN  PAIN. the meds helped but only a little.

The phone rang and it was the appt girl from primary doctor calling me, and she said Sandra do you still want the referral to dermatologist, I said yes please, I know what this is. 20 minutes later the phone rang and for the first time in my health history it was my Primary Doctor, Dr. B and she said, Sandra Tell me what is going on with you.

I did and she said, I am sending the referral now, call them in 30 minutes and get in as soon as  you can, I called and they said be here today at 4:30, and I was and she cut it off and sent the biopsy off and now we wait to work through the needle with chemo in it that will make it stay gone and die. 

If you care you like details, the label Volcano Cancer tells of on on Shin bone, May, 2024 and another right after hurricane Milton in Oct 24 and now this one on my wrist

3 Volcanoes in 14 months. The chemo kills them and they fall off. 

While all this was going on with ME Bob bullied his way into the pool that all the nurses and pts said do not go in and sprained his ankle and now he can not walk and we missed his 7 am doc appt because he could not get in the car.

I have yet to get through to the doctor, so we are waiting.

Its almost 9 and I have 4 calls to be made to Doctors, Lawyers and Indian Chiefs.

https://www.tulsaseniorcare.com/caregiver-matters---tips-for-caregiving/burnout-matters

I HAVE NO CLUE When I will be back... 

Bob Update on Infusion.

 

 

UPDATE on My Daddy's Infusion. I am so exhausted I can't stand up to talk, and this is also how Mama and Daddy look. 

Just the facts and Mama will be back in a day or two. 

The first day of infusion RN was here 9.5 hours, 2nd day 7.5 hours

Daddy got 4 bottles each day, it takes 6 hours 20 minutes for 4 bottles to drip.

He will get another one on the 28th of this month.

He has seen no change, not expected to for 3 to 5 days, he feels tired and achy and like he had been sick with flu. Expected.

Mama got an infected place on her arm, and the 2nd day went to the doctor and left me and Daddy with the nurse and is on antibiotics orally and on the infected spot. 

Mama is not happy with what the Nurse told her, because they did not tell us any of this before it began.

He will need the 6 hour infusion every 3 weeks for the rest of his life, if it helps, and his audio immune system will be destroyed, which is what the Drug does. She said the disease is shutting down the immune system because it is fighting with the protein and trying to heal,and it can't, and to stop it, they shut it down.

The RX uses plasma from other humans protein and has a slight chance of a contagious disease.

We are continuing to see what the Drug will correct, and with the PT coming once a week. We have the choice of home or in the office. We will continue at home although we despise it, until we can make a decision.

It all depends on what happens.

Not sure when Mama will post again, or get back to the blog world.

Mama has turned off comments.

 we are all three alive, and OK but not great .

I have an issue with my poop and might have to go to the VET.

Mama is in a MOOD and when out of it will continue here. The disease, the treatment and the dementia makes all this even more difficult

Mama thinks this is a carcinoma, she has similar one twice before like it, and that the primary will send her to dermatologist after next wed visit. The PA she saw said it could be, wait until the infection is gone.