Saturday Update Time

 

 

Can you guess what I am doing?

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I recently notice while brushing my hair, the the top is almost white 😁😁, but when looking at sides and front, it still has little brown color.

 Above is the first 4 attempts to show the white that is seen on the top of my head, Straight on it doesn't show.

I decided it was time to show you what my current self looks like after the past 16 months.

I tried a half dozen times and could not get one I liked.

The first, I decided to show you the real me, no smile, wrinkles obvious. the second, I looked like I was praying for the wrinkles to leave, 3rd  hunchback, 3rd one eye squinted other wide. 

I will do a week end update for a while, and if anything needs to be told will do that also.

UPDATE: Bob will not do his PT Exercise unless I do them with him. After 3 weeks of doing the balance exercises together every morning, my posture has straightened, my back stopped hurting, the ankles bend and the veins don't hurt, plus they don't swell like they did.  

Bob is able to walk with his legs much straighter, using his walker, his toes are curling under from the CIDP, and now they are 50 percent straighter. 

Rain came, we got 6 inches in one week, the grass is growing as fast as the weeds. 

I cut the grass this morning, with my phone in one pocket and bottle of Gatorade, in the other pocket. When completed I looked like I had been swimming in my clothes.

Hair plastered to the head.  

Most of you can relate to this update: It Is Hot HOT HOT! last night at 9 pm the feels like temp was 104.. We start each day with high humid 82 degrees, feels like 90, at 4 AM.. We had a wild windy thunderstorm last night with no rain. It felled limbs to be picked up in front and back yard and the lightning strikes were right on top of us causing me to flinch with every BANG.. that's it, love you and miss you All.

Me.. July 16, 2026

THE END
Beau is doing well, just took this while typing this post, he pretty much does this most of the time.

Wheelchair Rollover! Oh My

Yesterday was horrible. At our 9 am dermatologist appt for Bob, I was struggling to push him up the ramp, and do to slack off speed for a woman who passed in front of us, stopped and was backing down slowly to roll far enough away to get up speed, and the small wheels on the people mover, hit a wide crack at the bottom, turned his wheelchair over backwards and I went down out to the side. both of us down on the ground. The woman who passed in front of us came back and a man and a woman helped me get up and sat the wheelchair back on its wheels. The woman pushed Bob into the office and left us there..

Picture this laying on its back with Bob kicking like a turtle on its back. These are convenient, but his regular wheel chair, it would not have  happened. The big wheel would not have caught or turned it over.  Word of warning if you use one. I can't get the regualar wheel chair in/out of the car

His elbow was bleeding and due to an adrenaline rush I was shaking like a leaf... We got through the appt and back home and all we have is a small cut on his elbow and 2 large bruises, one on his back and arm, i have 2 bruises and my right hand is sore. I went for a chest xray because my rib was hurting, I see my doctor this morning.

I cried the rest of the day Just Because it happened.

We are blessed to have no permanent injuries. Bob swears it did not hit his head, and refused to go to the doctor. we are both alive and well

PT is coming at 9 and I have 10 am appt with my doctor to see what the x-ray showed, and she wants to check me  out.  Thank you Lord that we are not harmed.

The Mobile Mechanic came again

 The Mobile Mechanic came again on April 16th and this time he was disguised as a Handy Man.

The fence he is in front of Had old rotted fence that the storm wrecked and it was leaning on the neighbors new fence, covered in vines and STUFF and  a long the edge was a 2 foot wire fence that had been there for 10 years  to keep the dogs from going under the old fence. We thought it would be a simple roll up. NOT! the roots had wrapped around it and it took 20 to clear the wood fence and an hour to get that wire fence out and rolled up and to the curb where by night fall someone else was using it.

He cleared that one section, reinstalled a fascia board the storm blew loose , plugged the hole into our other neighbors yard, its their fence, and

was able to plug the whole between neighbor new fence and neighbor old fence and there is no way Beau can get out.

Keith, also put a brand new handle on the broken handle to the pipe that is the cut off to shut water to our house if we had a  leak. My peace of mind is complete. This young man has put a battery in the dead truck, hydraulics on my hood and trunk to keep them from falling on my head, new handles that allows me to open the back doors on my SUV and repaired holes, and water turn off in 3 visits. He is so reasonable in price I feel like I am cheating him.

Keith even text me yesterday know they were to pick up all the trash from the curb and asked if he needed to come put it all at the curb. I assured him he did not, that it was all out their waiting.  He said if I need help with something heavy or lightbulbs in ceiling, anything I can't do myself to text him and he will come.

Plus, my new friend Ruby pruned 1/4 of a tree in 20 minutes yesterday and it is at the curb waiting for pickup and she is walking with Beau and I tomorrow morning and coming prepared with gardening tools and we are going to finish clearing the fence to the fence line. She works for friendship, no cash needed... plus we have fun while doing it. she will pull, bend and chop, I will drag stuff around and pick ups sticks with my grabber... She wants me to sit in a chair and watch which I will NOT.
I am so thankful the Lord sent me these new people to help me and be my friends.

can you tell which one is new? ha ha

Sandwich Selfie of Beau

 

I was  sick, 2 nights in a row.. I threw up twice and paced 4 hours from, 9 pm to 1:30 am Tuesday and Wednesday had diarrhea with poo and rivulets of blood in it from 3:15 am to 9 am. I get really sick and Mama spends hours with me, holding, petting, hugging and following around the yard in the dark with 38 degrees. She wraps up like a mummy. It was so cold my ears were cold, and she wrapped my head in a baby blanket. 

Wed. Morning daddy fell, walking back to bed from breakfast with walker. PT came that day and cleared him, nothing broken. 

Mama went to her doctor Monday for 30 day check up on her new wonder drug, Lexapro and was changed from Lexapro to Zoloft because of one side effect. its been CRAZY-er because Mama took one Zoloft and fell back to where she was before all this started. She could not sleep, was wired, like on steroids, anxious, she yelled at daddy and me,  she was angry. She did not take a 2nd pill.

She called the doctor next day and said she stopped the Zoloft, and the doc sent a new prescription of the first drug.

Today at lunch, Mama said to Daddy from the kitchen where she was serving up his spaghetti, what do you want to drink, 7-UP or Gator-aid?

He did not answer. Just stared at the news he was watching.

Mama said in a LOUD VOICE

7-UP     OR   GATOR-AID?

Daddy said, Did you take that new pill? Your  yelling at me.

Mama said, there are things pills can't fix, answer me when I ask you a question.

Are you picking up what I am putting down?

We are Fine, we missed you

 I am sandwiched between my daddy

And My Mama, she has me as her screen saver on her laptop, and I am laying between her and Daddy. This is my happy place, when both are sitting beside me, I can sleep and know if anyone leaves the room, like say a trip to the kitchen, 

My Coffee Cup Keeps Running Away with my brain

 

My coffee cup keeps running away,

I can't seem to get it to stay.

 I was drinking it only minutes ago.

Where oh where is my coffee cup, I just do not know.

I actually got really angry because I could not find it, I even looked right at it, because I stand there daily to do my balance exercises in the sparkles of the nook, while drinking my first cup of coffee. I rushed/stormed around the house crying because I lost my cup. I did, really I did.

It seems that I did the last 9 months of 24/7 care-giving without having a breakdown and suddenly two weeks ago, life settled down, Bob showed much improvement and in most things improved to about 80 percent of his old self. Life is a lot better, so what is up with me now?

Why then do I lose everything I pick up, and can't see it when it is there?

I have reached the end of my rope, I am angry, even at inanimate objects. I drop a lid on the floor and curse and want to stomp it to smithereens, and sometimes get so frustrated I have beat on the walls with my fists.

I have become a poked bear, a snarly snapping shrew.

I am in a brain fog, I cry while doing the normal routine, I lose words when talking and can't remember what I am talking about. I stutter talk, stopping and starting.

I burst into tears, over little things that don't matter, things that just are, and have been for 9 months. An Example is, I am on the throne, the dog is staring at me saying POTTY NOW, Bob is on the bedside throne waiting for me, and I am crying and saying why, why why do we all have to GO at the same time.This is not meant to be a joke. This is serious. I need to see a doctor.

I pray and think I can pray it away and NOTHING WORKS, I am getting worse.

I screamed at Bob, can't you see I am losing my MIND? when he asked why I was crying.

I recived  an email from a blog friend and she tells me she thinks I might need the drug she just started taking, that her life has changed completely since she went to the doctor. Thank you dear friend.

Yesterday I called and went in to see the PA for my doctor, I told her all this and much more and she said.Do you think you have dementia? UM YES, 

Didn't you have the test for that? yes What did they say? They said I do  not have dementia.

She said, Sandra you are sharp, what you are feeling is common for caregivers. I ask why am I falling apart now, when everything is better? She replied, Because your body has been in survivor mode, everything is working and allowing you to function and do what ever is needed. Now your don't need your body's help, and you are in the same thing as when Adrenalin lets you do impossible things but when you have done it, your body gets weak, your mind gets weak and you need help getting back up.

I am picking up RX today. I am not crazy, and I might stop blogging for a few days to allow the meds to get my memory back.

MY brain needs to rest. Stop working for a while. Enjoy the serotonin the pills will  give me. I even forgot to give Beau his meds which I have never done before. He can't walk without them, I cried and cried over that. I am sharing this because one of you might be in a similar situation and need to know you are not alone and that doctors can and will help.

We don't have to suffer and fake it til we make it so others don't know we are suffering. 

I Love you all, and I might be here or might not, but I am OK and Will be better so I can make you all laugh and feel happy which makes me happy

I have Sunday and Monday on auto post, maybe I will be better by then.

AI and Me, Again

 

I opened my laptop camera and took the photo below, went to ChatGPT and ask it to make the photo into a sketch.. 

AI is wonderful, crazy, scary, dangerous, and a whole lot more. Each time THEY, come up with a new one, I dive in and play and play and then move on. 

I have to say that Chatgpt.com is really good, maybe the best so far. I have played with all the ones that pop up. I just went to websight and did the free version, no app, and no log in. It asked for me to log in with FB, and 2 others, but I chose email and that is all. no Passwords or using Social Media.

I took a selfie of Bob and I while we were eating his first meal at the breakfast bar this week, his first walk alone, using his walker, to the breakfast bar to eat since July 11, 2025. It's only 8 steps but we no longer have to roll to the kitchen, and roll back and transfer etc. He can stand up from the bed and get himself to the bar.

We have eaten every meal at that bar for 36 years, unless our kids were here to eat.

He remembered as we ate that the reason we always ate at the bar was the TV could be seen. Racing and Football back in 1989 could not be paused, backed up, forwarded or on a DVR.. He had to watch it while it was live. 

Beau was so happy, he hates the kitchen because of the slippery tile... 

The sketch below is excellent, from this 

this one is now my wallpaper on my laptop

I used this ,my favorite photo of Beau, and got this last sketch. I love them all.

Selfie Sunday 2025 (BeauSpeak)

Feb 2025

Since Mama stole Selfie Sunday a few times, I want  you to see ME in 2025. Research shows, Mama did not take as many photos of me as she usually does. In fact only a few. Good bye 2025, Hello 2026 and Mama said she will do better.

Mama says, I was depressed and all I did was sleep, I am feeling better now, and so are Mama and Daddy.. Heres to a thousand pics of me in this new year.

March 2025

April 2025

 

July

May and June, no photos of Beau. Bob came home to Hospital bed April 4 and I assume that is why not one photo was taken of precious Beau

August 2025

Things must have been better in September  because I took all of these.

September 2025 for the next different days

Sept 14 2026

Sept 6 2025

Sept 2025

Sept 6, 2025

Mama said to tell you, this is our life now, and we have adjusted to the new routine and I even throw my bones in the air and play with my toys.

We can breathe...... 

Goodbye 2025, Hello, 2026

My Breakout Moment part 1

(The Mad One forgot to take a photo of the boxes that are the subject of this post. I copied this from USPS)

 FED-EX left a box on the front porch, an empty box, when opened it looks similar to something you would place a gun in to keep it safe, lined with foamy stuff, top and bottom. One sheet of paper, with words and pictures stated Bob's InfusionRX people wanted their $3500.00 drug pump returned in this box. I am instructed to pack it carefully and drop it off at a Fed-EX drop off.

While searching for the pump, I discover the RED Jar inside the White Box full of broken needles and remember the first RN said when jar is full, call the number on the box for pick up.

IN WHAT WORLD DOES SHE LIVE? 

I see no instructions, I call the number on the box, and He has No Clue! He says we sell the boxes to the Pharmacy's, the Pharmacy that sent it to you. seems I had the factory that makes the boxes and has a contract with our Postal Service.

Steam is rising in small tendrils from my ears, when the Pharmacy that sent it to me has no clue.

 she suggest calling the NUMBER ON THE BOX. I say in a kind sweet tone I DID THAT FIRST AND THE DON'T KNOW AND NEITHER DO I

I listen to the music......and another He answers and doesn't know the answer and places me OH HOLD! 

 I lay the phone down with hold music blasting from speaker phone, (causing a what the hell are you doing from the hospital bed) and start yanking red bottles and boxes out of boxes and at the very bottom I find a sheet of paper, with instructions and the last thing on the list was After Properly Packing the box CORRECTLY drop off at your nearest Post Office at no charge for shipping.

I had a MELTDOWN! I fussed I fumed I even cried and said a few bad words. I worked myself into a real hissy fit!

I fussed about having to pack it all up, and DRIVE to the Post office and then drive to FedEx, plus stopping at our Vets office for Beaus RX...  (if I had calmed down, I would have seen it for the chance to break out of my jail cell) 

I fumed/fussed about having to ask my phone to find FEDEX and Post Office Near Me.

Bob at one time covered his ears during my outburst/HISSY fit. Really, He did. 

I found the nearest and not so dearest, and Made a LIST of stops, while fussing about Vet Visit Pickup RX, Drop Box Fed x and the Post office SEVEN MILES AWAY, it was Saturday and only one open.

As I slammed out the door, muttering under my breath about TRAFFIC, No idea when I will be back, I hate driving on the main road to the beach blah blah blah I left home, and 20 minutes later had dropped the FED-EX, picked up the RX, walked in the Post Office, having driven to all 3 places with very little traffic, hit all 6 of the traffic signals on Green, and 

in 20 minutes since I left home, I stood watching the couple at the window and pondering why Tall Men marry Short Women, how the strawberry blond 6'5" man found the tiny Asian woman, were they military? Meet on a cruise ship? Are they American? yada yada

I leave and hit the busiest street in town, and now it is bumper to bumper, and I think, let me off this street, I am in a sea of cars, when I spy with my little eye Manatee thrift Store! YAY! I have Time To Stop!

I am ahead of schedule, I pull in and Wow! step in the door, see 3 pairs of shoes 

To Be Continued...........yes, even longer than this but with pictures

Joining Yam for Final Friday Feature at My Take; doses of Wild Yam

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This and That (POO) on Thankful Thursday

 

Bad News: the lid came off the oatmeal plastic storage container

Good News: I am thankful it only had a few cups left in it and none went on the floor.

Good News! Bob's hearing aids have not been the same since he was in the rehab home, 3 months and finally just quit. I called for an appt to get them repaired on the day the nurse would be with Bob during infusion and they had  no appts.

He said bring them by at 9 tomorrow, drop them off and we will call. This was good but not good since he is stone deaf without them.

Next morning I stood at the desk talking to the girl and the man and I was explaining he was home in the hospital bed, and can't hear anything until I get them back. The repair is usually about 10 minutes, either the microphone or the receiver. Been there done that.

The man said We will fit them in and took the box, the doctor popped out of his office, took the box and said to me, have a seat, I will have these ready in five minutes no more than 10. When he brought them back, he said it was the microphone, it needed deep cleaning and drying out and it fine now..

I stepped to the desk to pay (they are not under warranty) and the Doctor waved his hand at me and said, your good to go, no charge and I will pray for your husband.

Sometimes it pays to be a Chatty Cathy (blabber mouth).

Thank You Lord

I laughed long and loud, I am thankful for laughter. My precious Big Beau Boy following Bob and Linda the PT, like a pied Piper, he took every step. NO he is not protective of his daddy, he loves each of the visitors and Linda has 2 golden retrievers and smells like them and her pockets smell like treats. Plus, she really loves Beau.

Joining Brians Home for Thankful Thursday.