Tuesday, June 24, 2025

Bob Update and a little Weirdness

 


Before I share the update, take a guess at what this is and after the update in your comment tell me what you guessed and I will share the answer.


Ha ha on me, since I had no photos for this tale, I chose this because it had been in drafts for days.  I will share bob's new towel, I bought a six pack of 100 percent cotton hand towels because they fit the grab bar, Now, I have 12, because we use a lot of towels. I know what you're thinking, so Yes, I hate gold too.

On to Bob's UPDATE. 
The infusion drug, that treats CIDP, is expensive, I saw how much on the web site, when I researched it, and had been dreading the call, for when, where, how much our HMO plan would pay. The drug is $2000.00 per vial, that includes the infusion in our home. It will be 2 hours on the first day, next day 1 hour and 1 hour every 3 weeks for 3 months.
TEN THOUSAND DOLLARS.
GOOD NEWS~ is we pay $1819.53, and the rest is covered by insurance. 
We pray now that he will tolerate the drug, the first time tells yes or no. And that he will regain the ability to walk. The good news is also, that we qualify for free PT therapist once a week for free.
The red thing at the top is my arm/handprint from lying on the bed to do my leg exercise. The odd thing is, the blanket shows my fingernails and to me, looks downright creepy








23 comments:

CheerfulMonk said...

I'm so glad your insurance will pay for most of the drugs and that it pays for one PT session a week. Prayers that the drug helps, and love and hugs!

Ginny Hartzler said...

I really missed it! I thought it was Beau's feet!!

easyweimaraner said...

wow that is like the famos blanket of turin... ;o) all the best for tolerating the drug ... and some extra fairy dust for good things what maybe come...

Yamini MacLean said...

Hari OM
Fingers crossed on the drug/therapy... and I knew it was your hand, but did not get that it was a blanket 'negative', rather that you had found some new voile sheers for your bedroom or some such! That the velveteen took such a clear imprint is both fascinating and, as you say, a tad disturbing! YAM xx

David M. Gascoigne, said...

I knew it was a hand, of course, but I hadn’t clued in that it was yours. I thought it was a disembodied appendage from a horror movie or something. I am glad that you don’t have to pay the whole amount for the drugs you need for Bob. Even so, over $1,800 is substantial. I am once again very grateful for universal medical coverage in Canada.

jabblog said...

I hope the treatment is successful - good news on the medical insurance, too.
I guessed it was your hand but didn't think about how you'd achieved that effect.

Ann said...

I'll be praying that the treatments work for Bob. Glad that your insurance will pay for most of it.
I thought the first picture was of your hand taken through something but I couldn't figure out what.

eileeninmd said...

Hello,
I see the hand clearly. I hope and pray that the treatment works well for Bob. Great news most of the cost is covered by the insurance and Bob can have the therapy! Take care, have a great day!

Pamela M. Steiner said...

I thought perhaps you had a very fluffy rug and had put your hand on it for something...and took a picture. I told you I see faces in our bathroom rugs all the time. I have spent too much time "sitting" there and looking for them. LOL. I love the nice little white hand towel. I never buy white...you are brave. People around here tend to wipe dirty hands on towels...which means they aren't washing properly first...and there's only two of us, lol. Anyway, I hope and pray the infusion works for Bob. I pray God will provide the $$ to pay and that it will be well spent. (((HUGS))) One day and one step at a time, literally.

Mari said...

I'm so glad the infusion is covered and will be praying it's effective!
Yes, that hand print is a little creepy

shug said...

I like your creepy picture and honestly it was seeing the nails that nailed this picture for me! I remember when my mom was being treated for multiple Myeloma about 20 years ago. her chemo pills were $6000.00 a month. I cried and I cried. ended up that it cost us about $1500.00 because the drug company gave us a discount. Praise the Lord. I am praying that this treatment makes a Huge difference for Bob.

The Adventures of the LLB Gang said...

You find the coolest things to snap Sandra...the hand is a bit creepy, but VERY cool!!

Sending prayers that this medication works for Bob!
hugs,
Beth

DeniseinVA said...

Your hand picture is surreal looking. Saw the hand but couldn’t figure out how you came up with that effect. A relief to know the insurance covers most of the medication cost. Prayers for it to work for Bob.

Sandee said...

You hand does look a bit creepy. It's cool though.

Great news on the medication costing you so little. I hope and pray that it works for Bob.

Have a fabulous day, Sandra. Big hug to you, healing prayers for Bob and lots of scritches to Beau. ♥

DawnTreader said...

I could see they were handprints of some kind but I could not understand on what. My first impression was hands pressed against red glass...

DawnTreader said...

Hope all goes well with Bob's treatment, and glad at least the major part of it is covered by insurance!

My Mind's Eye said...

What a wonderful bit of news on the cost of the drug and especially PT....Bob will need that after so long being immobile
Hugs cecilia

Debby @ My Shasta Home said...

I truly hope and pray the infusions will work. That’s an expensive co-pay but it could be worse without insurance. 🙏🏻🙏🏻🙏🏻

Marvelous Marv said...

Wow! The hands are creepy! And I do hope the infusions work! I am so glad that most of it is being covered. And great idea with the towels! I wish I had thought of that (when I needed it). Keep being awesome and kiss Beau for us! Barb nd Marvelous

Mevely317 said...

Never would I ever have guessed the "red riddle"! I didn't even notice your nails until you mentioned it. Looks like something in a modern art museum exhibit.
I'm praying that Bob's treatment(s) are going to be just the boost he/you so desperately need!

Walter & Angel Millie said...

We're keeping all fingers and paws crossed that Bob tolerates the infusion.

photowannabe said...

I am so thankful that your insurance will pay the bulk of the infusion costs and for the PT visits too.
Praying that Bob will tolerate the infusion and he will regain his ability to walk.
Prayers for you too my dear friend.
(((hugs)))
Sue

Meezer's Mews & Terrieristical Woofs said...

Wow, that IS an expensive medicine. At least most of it is covered by the insurance. And prayers that Bob will tolerate it well, and that it will have the desired effect. PT will be a needed thing after the length and severity of his immobility.
That hand...wow, it looks like something from a hitchcock movie...or a halloween horror show. What a cool thing that your blanket even got the fingernails, OMD!!