Sunday, August 10, 2025

Another Bob Update

 


Bob after the transport company brought him home wearing his walking boot whichever he received July 28th. Transport used their wheelchair, and we beat the rental hospital bed by 3 hours, and transport placed him on the sofa, and he was happy to lay down and take an instant nap after 3 hours sitting on his bedsore wound. We used Medical Purpose transport to go to Coastal Orhto Pecano, for boot and they also brought us home. Worth every penny of the 80 dollars, it cost to transport a wheelchair, and come back for us. We will use them again on August 25th for XRAY of cracked ankle bone, and to hopefully remove that boot. It is hard to walk with and he can't because he has no strong leg.



After 4 days in hospital, and 3 weeks in Rehab Home, Bob came home at 10:30, August 5, which was 22nd day in the torture chamber of the Rehabilitation Home, and before that he was 4 days in hospital with broken ankle.

He is home and cannot walk even with a walker. He can sit up, swing feet to floor and do excercises with PT and OT. No Walking yet.

We have Home Health that comes, Wound nurse, for bed sores and his poor scalded bottom from being in the nightmare of the skilled nursing facility that caused the sore and left him each night for hours in urine and feces. 

We have a Nurse as needed or 3 times a week, for medical things, our  would nurse just left and this is Sunday. Impressive. She was shocked at the difference of the wound now and on the 5th when they took a photo of it. She said I am doing fantastic, I said its killing me, and she laughed and said, but look at the improvement. She said because it looked so bad, they sent me to check on it on Sunday. WOW

We will have a phlebotomist come and check his blood thinner levels every Tuesday, PT and OT therapist and 3 nurses... for as long as we need them. Yet they don't pay for the bed rental or the other devices, or transportation to doctor visits.

Bob's primary doctor, ONLY DOES VIDEO Calls with patinets who OWN iPhones and can do FaceTime. We do not, so either he doesn't go, or i cough up 80 dollars..

This is much like taking care of a baby, 24/7 He is bed bound here, and much better off than the treatment of leaving him in feces and urine and not answering the call button at night. He is no longer Ambulatory, and we are in the process of starting the infusions for CDIP infusions and they stopped while not in home.

this is our call button the first 2 nights, trust me I could hear him beat on the bottom of the pot.


and this is the Ingenious MS call button that works like a charm. I put the spoon in a tin that contained tea bags.



The sofa was moved to the window to leave room for the electric bed.



Wheelchair dining cart, easy to move. 

w

above bed replaced the love seat below, which was Beaus Place to Sleep. They moved it in front of the window and put the chair that I watched out the window in the bedroom. Beau has not touched the loveseat since. I paid 50 dollars to get the furniture moved around the night before we came home. I called Bills Discount Furniture and asked if they had anyone that would come move the furniture, the delivery guy came after he got off work and moved it for 50 dollars.


Life goes on, the dog begs for food, the man eats off the bedside table also known as the people mover wheelchair. the mama works and works and cry's while she does it, but she gets it done.
Amazon loves me because I have spent hundreds of dollars turning the living room into a hospital room.



I even have an Adult Changing Table full of wipes and diapers and salves and lotions and sprays and waste basket to go in the potty that use to belong to my beloved, Jackie who dies on Valentines Day. Thank you, Richard, for donating it and its perfect.  

No idea at all when i will be back, except for updates of changes, for my records and for those of you who have been so kind to me while this tornado turns our world upside down.
love you all and miss you all.



34 comments:

Sandee said...

Thank you for the update. I know how hard this is. Very tiring and no time for anything but Bob and Beau. Bless you and I pray that things will get easier for you.

Have a fabulous day and week. Big healing hugs all around. ♥

Kten said...

Hugs. I hope being home makes this hard task a tiny bit earier.

Ginny Hartzler said...

We miss you even more because we do not have all this hard work to keep us busy. I cannot believe that Bob is actually WAVING at the camera!!!! He must have been overjoyed to be home. You are super organized and in overdrive with planning. And this skill is sure where you need it the most. I was SO glad to see this update and the photos!!! Sending lots of love.

Debby @ My Shasta Home said...

It’s so good to see your update. I’m sure just being home will make for more comfort for Bob which aids in his recovery. I’m sure it is very hard work on you but at least you’re home with Bob and Beau is no longer alone at home for those hours you were at the hospital. Big big hugs to you and I’m praying for your strength and health as you care for your husband. God bless you.

Tigger's Mum said...

Sandra - just thinking about you last night and was going to email you a funny poem - I'll do it anyway. Meanwhile great news that you guys are all at home together. Beau will get over moved furniture. As for iphone Dr consultations - can you use your ipad (will it take a simcard? Move the sim from your phone.) I know nothing about facetime but you are a tech genius I'm sure you could work it out in no time. (or borrow an old iphone off someone - you wouldn't need the latest whizzbang version). I was horrified that the nursing home encouraged bedsores to proliferate like that. We are so much more advanced these days - it is all so avoidable.

eileeninmd said...

Hello Sandra,
I am happy for the update. My hubby got sore from 8 days in the hospital. I can only imagine how Bob felt with the bed sores.
It does sound like you are doing a good job taking care of him.
I know how some of it feels, hubby is not quite as bad as Bob. Hubby can walk, which is a blessing! Sending prayers for you, Bob and Beau. Take care and stay strong.

♥♥ The OP Pack ♥♥ said...

We were just thinking this afternoon about when we might see another update, and voila!!! here it is. We are glad Bob is home where we know his care is 10,000% better, but we are sorry so much is on you. The help is nice, but it is still up to you to get it all organized and done. Bob is very fortunate to have someone who loves him so much.j God bless.

Chatty Crone said...

It just breaks my soul to read this - yet I am so glad you take the time to let us know what is going on and that you are still alive. I can't believe all that you have had to do.
I just want to you know I think about and pray for you every day.

Sparky said...

Bless your heart. What a trial this has all been! You are loved and appreciated you too. 🫢🏻 Thank you for the update. I know it must take a lot out of you to stop and write all this. Hope it's therapeutic to share it all. Remember to take care of yourself too as best possible. Sending gobs of prayers your way. God's got this. Love. πŸ™πŸ»πŸ’–πŸ™πŸ»

CheerfulMonk said...

Do you still have your iPhone 7 Plus? I’ll check to see if you can Facetime using your iPad. Love you! Sorry about the ordeal, but at least he’s home.

Mari said...

Sandra - thank you for this update. I'm so glad Bob is home, but sorry about the poor care he received and all the issues you are dealing with. I'm glad all three of you are together again and am praying for you and that things settle down.

Pamela M. Steiner said...

Oh Sandra, thank you so much for taking the time to update us on Bob and you and Beau's situation. I have been thinking about you and wondering how things were going. This is somewhat good news...I know it is very hard on you, but apparently not as hard as seeing him being mistreated at that place. That would be terrible to see him suffering and those who are supposed to be caring for him not really caring. They should be reported. But meanwhile, I am thankful for the progress that has been made, and he looks much more relaxed and happy to be back home, where he knows he will be loved and cared for. Beau is relieved too, I am sure. Please pace yourself and rest when you can. I know it's hard, like having a newborn baby in the house and no rest for the Mama. But I'm happy to hear about the different ones who come and go and help out throughout the week. That is a relief time for you, even if just for a few minutes to not have to be the one answering the call. Praying the infusions will start again soon and that they will actually help him to be able to walk again, once that boot is off. May God continue to give you strength and peace of mind that He is indeed taking care of you all. (((Hugs))) and prayers continue.

David M. Gascoigne, said...

It is a travesty - and heartbreaking - that institutional care of people in need has sunk to this level. It goes beyond neglect, it challenges the mere concept of dignity to which everyone is entitled. I have little doubt, Sandra, that you are stepping up every day to provide proper care now that Bob’s well being is under your control, but the strain, both physical and mental, must be enormous. We all admire you and wish you the very best. Under your present circumstances that is probably of little comfort and certainly of no practical help, but it’s the best we can do. With love, David

Walter & Angel Millie said...

It's so good to hear Bob is home. Even though it might mean a bit more work for you at least now you don't have to travel back and forth from home and Beau has you both with him all day. It's sad to hear about how he was treated at the rehab facility. Some of the places around here have some of the same problems due to being understaffed. It boggles the mind how any government can allow those facilities to remain open with such horrible treatment for patients. You are always so clever in coming up with solutions such as your "call button". As I said in my email I'm thinking of you often. If there was anything we could do for you from afar (maybe share an Amazon wish list) just let us know. Sending love and hugs to all of you.

messymimi said...

It's great to see an update. You're in my heart and prayers.

Mevely317 said...

Remember that old TV show, Mission Impossible? Methinks MS has crafted a whole new epilogue! The "call button" is brilliant!
Thank you so much for this update and photographs. Still in my heart and prayers!

Brian's Home Blog said...

I don't know how you found the time for an update but thanks. I have been wondering and thinks about you all. Big hugs from all of us.

Coloring Outside the Lines said...

Bless his heart- it sounds like he had a super rough time in the Rehab. I believe I would be talking to lawyer about that! Sending up prayers for you both. Take care of yourself!

photowannabe said...

Oh Sandra, thank you for the update. I have been praying for you, Bob and Beau too. So glad you are back home with familiar things and the comfort of your own home. I do know how those rehab places can be. When Dave broke his leg it was during Covid and we couldn't visit him or even go in the place. it wasn't good at all. Having transport bring him home and the bed set up and furniture moved were good.
Continued prayers and healing. Know you are Loved.
Sue

Linda said...

Honey, I am so praying for you as I know you are prayingfor me. I feel your pain and think you are doing such a good job navigating this next to impossibile situation. Love and prayers every day from Texas...

Asep Haryono said...

You’ve worked so hard to make the place comfortable and safe for him honestly sounds like you’ve turned it into a mini hospital

I can only imagine how exhausting it is, but your dedication is incredible. Even through the tears, you’re doing an amazing job. Sending you both strength, patience, and hugs, and hoping that August 25 brings good news about that boot.

Hang in there you’ve got this my friend

diane b said...

I hope you have time to read all these lovely comments. You are living such an ordeal. I don't know how you manage. You are a wonder woman. You certainly know how to organise everything to be able to nurse Bob in his own home. I'm sure that will aid in a more speedy recovery. You do seem to have a bit of help, I hope it continues. It is sad you have to pay so much for transport.It must be good not to have to leave Beau for hours and good for Bob to be home where he sounds like he is getting better help than in the hospital. I feel for you. Your job is so hard mentally and physically.
Thanks for the update. I often wonder how you are getting on.Sending Hugs and best wishes.

Meezer's Mews & Terrieristical Woofs said...

Thanks so much for taking some precious moments to give us this update. I am glad you were able to get Bob out of that nightmare of a so called care facility. If that happened where I work, it would mean that heads would roll, because that kind of non care is inexcusable and in our state it would be grounds for closing a facility due to neglectful abuse.
Anyways, I am praying that all will go better now with your efficient and LOVING care, and Bob feeling 100% better, just because he is at home, and Bea must be happy too. I am sure Beau will soon find a new place to rest on/in.
Maybe you can get an IPhone on contract just for the purpose of video calling, I know that here there are stores that can do that, ask at Walmart. I am sure it would be less $$ than 80$$.
May God continue to keep you strong and able to do what needs doing.

jabblog said...

It's so good to hear from you and to know that Bob is now home again and there is a semblance of normality creeping in. You are amazing.

Yamini MacLean said...

Hari Om
And yet again Blogger delivered your post half a day late! Still, I am glad to see this full update and join in the chorus of admiration an emotional support, which is all we have to give you. I too was in rapture that Bob was waving to us!!! Let him know it was appreciated. Big hugs, YAM xx

Ann said...

The comments here are testament to how much you are loved and missed. You have a very efficient looking set up there in your living room. I'm sure that Bob is much happier being home and thankfully he's no longer under the neglectful watch of the aids in the home.

Cathy said...

Hello Sandra ……and Hello Bob, we see you there waving with a smile on your face. Thanks for taking time out to fill us in ( and get your thoughts down on paper)
Love to you both….and Beau as well. Xxxx

The Adventures of the LLB Gang said...

We are so glad to see Bob is home, and you are all reunited. I am sending so many prayers in hopes that the coming weeks bring healing for Bob, and comfort for you and Beau.
Big Virtual Hugs,
Beth

Donna said...

Praying for you all sweet lady!!!
hugs
Donna

DeniseinVA said...

Thanks for letting us know what’s been going on. Good to see Bob home but it has been and continues to be a very long exhausting road for you. Sending prayers dear sandra, we all miss you.

Debby@Just Breathe said...

First of all, I happy to hear that he is home and your setup in the living room looks great. Glad the transport worked out well for you. I'm glad to hear that his wound is better. It sounds like the help is coming often. I hope that helps you out. Sorry about the iPhone issue. I'm glad you came up with a call button for him. Glad that you found someone to move the furniture but sad that Beau won't use the loveseat. You are doing an amazing job and I know this is extremely hard for you. ((HUGS)) Love you and miss you too. I wish I lived nearby so I could help you. God Bless You.

Breathtaking said...

Hello Sandra :)
It's disgraceful how Bob was treated at that terrible place, but he's under your control now and I know it must be so hard on you, but Bob's comfort and the love he receives in his own home will aid his recovery. Keep strong dear Sandra, and thank you for the update.
Much love and hugs.
Sonjia.

The Happy Whisk said...

love and huggs to you and the boys. Not easy what you're doing. You though, crying or not, are one tough cookie.

Shug said...

I've been looking for an update. Being a care giver is not an easy job and my prayers are being lifted for you. You also have to take care of yourself. Prayers for Bob, that the sores will all be healed and that he can soon use the walker. Bless you both during this very trying time.