Added to his memory issues this makes life challenging. We came home late yesterday afternoon on May 2, choosing in home therapy/nurses for the next 20 days, over rehab. He refused rehab and I felt he would be more comfortable here and so would I.
Who Moved My Cheese? Someone moved my Cheese. I need a new routine, we are working on that today,. He is in the pool walking back and forth and when he gets out I will bathe him with the soap and dry sheets and do his hair the same way, while he sits by the pool.
Watch the video if you are not familiar, because my cheese has been moved, and I am learning where the cheese, where and when it will be moved and adjusting my attitude and skills.
I am NOT a natural born nurse/caregiver, must have a routine and that will calm me down.
Our health plan pays for 20 days of nurse/therapists, 3 times a week. the nurse came yesterday, the therapist comes Monday between 10 and 12, he sees his primary doc at 9:15 on Mon, his neurologist on Tuesday. Please pray we can get him in and out of car/chair/office. There is a free wheel chair coming sometime today, have to find help bringing it in and unboxing.
Right now, The Cheese must be assisted with everything, and I have to move him safely, so far, we are doing well. Beau, our dog is fine, but did have a bout with poopitis from well, eating possum and mallard poo... this is the link to who moved my cheese We were requried to watch this several times at my prior workplace, each time there was a major change. this IS a major change
Until then, MadSnapper and Beau will be temporarily Closed.
how I entertained myself 4 days of sitting in the hospital.
the green light under his bed, was a night light and fascinated me, it changed with what light was in the room.
Nurse Chelsea was an angel that God blessed us with, and so were Matt and Claudia, who took great care of Bob.
nurse station front desk, Neuro Unit
40 comments:
It is hard. But know that as hard as it is, you have help now. And day by day, the old tried-and-true: one day at a time: YOU WILL GET THROUGH THIS. Try not to look too far ahead. You can be a caregiver and so far, you are doing a good job, really. Just take some time each day for YOU.
Hari OM
echoing Ann's words - one day at a time is all you need to concentrate on now. The blogging can wait. POTP working hard for you all. YAM xx
Hello Sandra,
I am so glad you have help at home with Bob. You are doing a great job with Bob too.
I am one who like routine too, so I know how you feel.
Thanks for the update. Sending prayers for Bob and you!
Yep, I remember having to watch "Who Moved my Cheese" at The Legacy ... plus read the book. Like you, I need routine in my life; so I'm glad you're already formulating a Game Plan. Step #1!
Still praying for all 3 of you!
Oh goodness...I am so very sorry that you all having to deal with all of this.. Bless him and you Sandra.Keeping you both in my prayers and hoping for the very best as far as Help is concerned. Hope you will keep us updated. big hugs to you my dear friend
Just know that you’re not alone. We’re all here praying for you and Bob and Beau. You are loved! 🥰
I watched the video. I had never seen that before. I am currently having trouble with change and I need to accept it and move forward in a new direction. This is a huge change for you. I hope all that come to your home are able to help Bob. ((HUGS))
You know that you, Bob and Beau are in my thoughts and prayers every single day.
Thanks for this update. I'm sorry about the hospitalization, but I'm glad he got all checked out and that you have some help now. Praying for all of you!
The cheese search is ongoing. I'm so glad you now have some help, but sorry that Bob ended up in hospital.
I watched Who Moved the Cheese and it kind of blew my mind.
You have had multiple things thrown at you at the same time. It will be hard to find your new path - and you will - why? Because you know it has to be done, and you are willing to do it!
Thanks for the update, Sandra. I have to admit I found the cheese video rather complicated, but I guess I get the point. It is true of course that when our circumstances change, we also need to change our routines and priorities. I wish you success with the current necessary adjustments for both of you and also hope the "home therapy" will prove helpful. ♥
We're glad to hear Bob is home now and hope it all goes well with the in-home care. It's tough when your routine is disrupted, but we know you will make it through. We've been thinking of you all while we've been dealing with Millie being in the hospital too. She is home now, and we are hopefully continuing her recovery from pancreatitis. All paws are crossed, and we are thinking of you often with the hope that Bob can feel better soon.
Mega hugs and lots of love from all of us. I hope you get into your caretaker groove soon.
Lots of hugs and love coming your way. Healing hugs to Bob. You are not alone. You'll do just fine, but do take time for you. You need to care for you so you can care for Bob and Beau. ♥
Dear Sandra :)
Thank you for the update. I have been thinking of you both and It will be easier now that Bob has therapy three times a week. I hope it helps bob's mobility and I think you are doing a fine job too. I know it's tough when our routine is disrupted, I also like to keep to a routine', but you will sort things out,. Please take care,
sending warm hugs to you both.
I will miss your blog so much. But I intend to keep in close touch. I just watched the cheese video. It made me more fearful than ever!
PRAYING for YOU and Bob !!!
Many words are swirlling around in my head but all I am going to say is Love and care..
(((hugs)))
Sue
Thanks for the update Sandra, praying for you every day. I am going to miss your blog my friend but will send you an email every now and again just to let you know I am thinking of you. Sending lots of hugs.
We are all with you in spirit, Sandra, and wish we could do more. Perhaps there are bloggers in Florida who read your posts and could physically pitch in and lend a hand. This is the time when true friendship is put to the test. I am sending you my very best. Stay as strong as you can. It is not easy. Hugs - David
this is difficult news to read and we know how difficult it must be for you. Accept all the help you can get and remember at some point you will have to take charge and make all those tough decisions. We are so sorry you have so much to handle on your own. Lots of prayers headed your way
Thanks for the update. I'm with Ginny, I'll miss your blog. I'll check in on you through email. I'm sending lots of hugs and prayers that you always know where you're cheese is.
I’m glad you are back home and are getting some help for a while at least. I had never seen the video and it’s appropriate. Much love and prayers, and thanks for the update. ❤️❤️❤️❤️❤️❤️❤️
Sandra I needed a little while to absorb all that - stenosis 🙀😱! That sounds horrific but I g**glad it and see that it does respond to treatment. I hope the help you get at home is enough to put you guys back on the right track and give Bob a better quality of life (well you too as you are the carer.) You have to look after yourself too.... On lighter note - amazing what you can find to amuse yourself while sitting by a hospital bed. Big hug to Beau.
Oh, Sandra, I have had you on my mind and was about to send you an email to find out how you are, and now I see this. I guess I missed it yesterday as we were out and about and I wasn't doing much reading. I am so sorry you are going through so much, BUT...I am thankful that finally you are getting some much needed assistance and attention to this matter from others. Remember I prayed for God to intervene on yours and Bob's account, and it looks like that is exactly what has happened. I know it's hard, but God is with you...He even sent you a little green light to entertain you and let you know that you are not alone in this matter. You will both continue to be in my prayers. I know this isn't easy, but you are not alone. And God will give you exactly what you need for each new situation. I haven't seen the video yet, but I will watch it later. Please take care of YOU, dear friend. Glad you have trusty Beau there, even if he does eat the wrong stuff!!! yuck! glad he's okay! Sending you big (((HUGS))).
Sandra, this was a tough post to read and thank you for sharing what has been happening to Bob, yourself and Beau. Your fellow bloggers will miss you, but are with you in heart and spirit.
Praying for you all sweet lady...
hugs
Donna
Sending mega virtual hugs and ontinued prayers for both Bob and you.
As a person who is not a natural nurse, I am thinking of you. May you find the grit and reliance needed to help you through this challenging time. POTP for Bob. The Lady and the River Cats
I am glad to see this update and can only pray for you as you navigate following the cheese! You are amazing and keep on keeping on. Praying for strength as you take care of Bob. Love you, Sandra!
we got "gifted" with this book at work years ago. surprised and laffing that hem and haw are men in the video, as they are mice in the book. So sorry your world has changed but glad you all are working thru your new reality.
So sorry this is happening. Being a caregiver is so hard. It takes a special kind of training and personality which I do NOT have. I admire anyone that can do it and not go coo-coo bananas. I do visitation for folks in Hospital or Rehab I know or are in our Church but that's just an in and out kinda thing anyone can do. Anyway, I wish I could help y'all somehow. All I can do is pray.
Love ya friend. Wrapping you in prayer.❤️
Hello again, just popping in to let you know I am thinking of you.
The theme is one day at a time I 100% agree. I hope and pray you both find each day brings you more ease as you work to adjust.
Sandra take care of you too
Hugs Cecilia
You do have my prayers, plenty of them!
You are very brave and it is commendable that you are working through this so well, considering, the circumstances.
I am happy to know there is help coming to your home right now. Maybe when they are there, you can take some 'me time' for yourself.
Eventually you will figure out some kind of a routine, you are quite the practical lady, so that helps.
Praying for strength to tackle each day and to get through each day, one at a time.
Sending huge higs, too.
I’m glad to hear that you you’re getting some help for now. sending lots of love and hugs.thanks for the update. I’m thinking of you and praying for you both. I’ll miss your blog. (((Hugs)))
This is hard real-life adulting you are going through. I'm sending lots and lots of huggs your way. Thinking of you both. I've been away so I'm not updated on everything and I'm sorry that my email still doesn't work. Sending love and huggs to you and your family.
Sandra, I wish Florida was not so far. I know your pain, confusion, and the myriad feelings that course through your brain. The lack of sleep, the helplessness, the frustration and the fear. I know that you have given a lifetime of nurturing, caring and love. Taking care of my husband, I learned one of the most important ways you can help your spouse is to take good care of yourself – it is so much easier to cope when you are not ill or are overcome by exhaustion. Sending Strength and Love and >-(HUGZ)-< and Atta Grrls. Barb
I am keeping you both in my prayers. It's such a hard time for you and I know you are doing your best with the challenges. We all love you both so much! Hugs, Diane
I'm catching up, after knowing you weren't posting anything. Moving on to the next blog post. God be with you through this, and with Bob, too.
That anonymous is Amy withy Xena, Chia and Lucy
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