Macho Man Bob

 

Most of you know, Bob stopping walking except when using a walker, on March 26th. The story is under the label Bob's Walker. This is the diagnosis we have from the 4 days in hospital.

Neuropathy, leg ascending paralysis 

Partial paralyzation lower extremities

CIDP (chronic inflammatory demyelinating polyneuropathy)

Moderate Spinal Stenosis 

Bi Lateral extremity weakness, high risk for falls

Vascular Dementia

After a visit to Neurologist, we have been pre-approved for the infusion drug, Gamunex, to treat CIDP and are awaiting the phone call for the first date of the first visit to our home to do the first treatment. 

I found this on the website for the drug, and now it easier to understand how Bob has felt for the last 3 months. We are blessed and thankful that his is toe to knees and not to the hip like this photo. He simply has to drag himself by his True Grit and swimmer arms and shoulder, along the floor by his arms. 

I used these photos to show you that he is a perfect example of True Grit. these photos below were taken on the 15th and this is the 3rd time he has worked on the pool filter, sitting on a 15-inch-tall bucket, with my help and the help of the grab bar my son put on the wall to help. In his mind he can do it, which means he does. Yes, I have fretted, cried and tried to make him stop. NOT Gunna Happen.

Pray with me that this drug will help heal him of this rare disease CIDP and allow him to walk again. My prayers and yours have kept him safe during these 3 months, 4 falls, 1 hospital stay as we deal with the dementia. I am thankful that the Lord has shown me how to look at Bob and see what he is going through and think about how I WOULD FEEL, if I were locked in dementia and my legs had trapped me in bed/sofas... if every bite I ate, every drink I take, every step I walk, someone has to help me do it.

Trapped in our own body, 100 % dependent on others, on the person I live with. Sometimes even help with using the TV remote. 

At first, I was angry and shouted back when he shouted at me and cried at the hurtful things he says. I talk with God daily and ask him to remind me of this verse and he does. And when I forget and say hateful things back at him, I asked forgiveness and help in seeing him through Gods eyes. This verse has allowed me to come back to blogging.

Luke 6:31: Do unto others as you would have them do unto you. Also known as the Golden Rule.

I look at him and say to myself, if I were in his shoes, how would I want to be treated. If I had been a Macho Man who could do anything and all things, and lost those abilities, how would I want to be treated. 

TREAT OTHER THE WAY YOU WANT TO BE TREATED! 

Some of you may worry about him in the pool. Don't Fret, he is fine. I sit at the table and watch him and assist in and out. 

I am thankful he has not fallen, has not injured himself, has not got infections from algae, and that we have the pool that keeps him going in mind and soul and that he has been swimming laps daily for 25 years at the YMCA and in our back yard.

Joining Thankful Thursday at Brian's Home Forever

https://brianshomeblog.com/